Wednesday, January 11, 2012

Singing Vlog Post #1 - "Good Morning Migraine"



Migraines are commonly suffered by people with Lupus and these monster headaches can last days and days on end. Add a lupus flare to the mix, and whatever medicine you were taking to treat the migraines all of a sudden become about as effective as sucking on a Now and Later to get relief for being run over by a bus!

So, during a bout with a migraine that just would not let up, I woke up one morning and there it was to greet me and I thought to myself, "Good morning migraine" and the song "Good Morning Heartache" by Billie Holiday popped into my head. With painful eyeballs, I picked up my phone and found the lyrics to the song and found that they expressed exactly what it's like to be plagued by migraines on a daily basis. Then I got the loopy idea, after the migraine finally let up and I could think clearly again, to record a video of myself singing "Good Morning Migraine" to the stylings of Billie Holiday.


"Billie Holiday" ;)

I donned a wig, my mother's pearls, and as much make-up as I could apply and began recording!

I hope this video brings a smile! If we're not laughing we're crying, right?

Today is a Gift ~ Live Thankfully

Monday, January 9, 2012

Let Me Just Slap an 'S' on My Chest

"Still when I'm a mess,
I still put on a vest
With an S on my chest
Oh yes, I'm a Superwoman"
- Alicia Keys
One day in the car with my sister, after I rather bossily ran down a list of things I thought she should do, she interrupted me and said sarcastically, "One moment. Let me just slap an "S" on my chest." Now, I can't remember what we were talking about or why I was nagging at her (completely and utterly fulfilling my roll as the Naggatha in the family), but I remember laughing so heartily that my eyes began to water. Only after wiping my tears, and regaining my composure, did I realize that there was a gem in what she had just said.

As a woman, and as a person living with Lupus, Fibro and other associated difficulties, I take on probably way more than I can handle at times and everyone else's wants and needs tend to come before my own and I find that I "slap an 'S' on my chest" and soldier on. The thing is, the 'S' I've slapped on my chest isn't attached with something that has any kind of holding power like crazy glue or Velcro. It's a wimpy peel & stick that falls off after the slightest bit of activity, requiring me to keep reapplying it, removing any foreign particles that keep it from sticking, and pressing on that 'S' harder and harder to get it to stay in place.

I remember though when that 'S' has some staying power! After putting in an 8-hour day working to give my boss the best I had to offer, I went home and gave my husband the best I knew how to give being the supportive, non-complaining, hard-working wife. The 'S' stayed on tight as I gave to my ailing mother whatever I could to keep her comfortable and her needs met. Then there was my ministry that I wholeheartedly gave time and energy to sharing comforting Bible scriptures and principles with anyone who'd listen. Then let's not forget my family and friends, both near and far, that I tried my best to maintain meaningful relationships with. My 'S' was firmly affixed and gleaming!

Enter Lupus, and as much as I fought to keep that 'S' firmly affixed to my chest, the Velcro all of a sudden seemed to accumulate all kinds of obstacles that prevented me from being able to do so. But then, joy of joys, I discovered the peel & stick kind! They don't last as long, but they allowed me to still be able to take an 'S' out every now and again and slap it on.

The thing about the 'S' is that it feels so dang-blasted good to wear, even if it's just for a short while and I may pay for it later when my Lupus flares up and keeps me in bed for weeks. But even then, laying flat on my back, I get small opportunities to slap an 'S' on my chest and feel of some use to someone, somewhere, either close by, or far away, with the loopy stories and experiences that are my lupie existence and maybe share a smile or a laugh or a nod of agreement.

So don't look up in the sky, because its not a bird or a plane, it's someone broken in body (and at times in spirit) with a peel & stick 'S' on their chest trying to do all they can, with what they have, and considering it all...pretty Super.

"Today is a Gift ~ Live Thankfully"

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